Raising Sons with Purpose: A Father’s Devotion to His Deafblind Children
For Fawaz Al Hasban, caring for his two sons, Ahmad and Osama, is not a burden but a profound expression of love and duty. Both sons live with Usher syndrome, a rare condition that causes dual sensory loss, alongside autism and balance challenges. Fawaz, often called Abu Abdullah, rejects the label of a "hero," insisting that he is simply fulfilling his role as a father. By acting as their bridge to the world—serving as their eyes, ears, and voice—he has empowered his sons to pursue education, including studies at the prestigious Perkins School for the Blind and the Helen Keller National Center in the U.S. Through the use of tactile sign language and assistive technology like specialized iPads, the brothers have gained a remarkable degree of independence and a connection to the world around them.
Beyond the classroom, the family is defined by a philosophy of internal growth rather than comparison. Fawaz encourages his sons to push their boundaries, whether by exploring historical sites or mastering new communication tools, emphasizing that their only competition is who they were yesterday. He passionately believes that a child’s resilience is a direct reflection of the parent’s own strength, urging other families to foster self-belief and patience. Ultimately, Fawaz challenges society to stop viewing disability as a deficit and instead embrace it as a facet of human diversity, treating every individual’s potential with the dignity and opportunity they deserve.