Rayan Daboul’s life was forever changed when she received her diagnosis of Multiple Sclerosis (MS) at the age of 22. Initially, she went into denial, hoping to continue her life as usual. However, as the reality of her condition set in, she realized that adjusting her lifestyle was just the beginning of her challenges. Determined to combat the stigma surrounding MS, especially for women, Rayan embarked on a journey of awareness and advocacy.
One of the significant challenges Rayan faced was managing her symptoms in hot weather, which exacerbated her condition. She had to adapt her daily routine, learning to stay cool and dress smartly. This constant adaptation became a part of her daily life. Additionally, her diagnosis highlighted societal expectations placed on her as a woman, particularly regarding marriage. The stigma often left her feeling misunderstood, as others struggled to grasp how even simple tasks could drain her energy.
Now 24, Rayan has transformed her journey into a creative outlet by becoming a content creator. She uses her platform to share her story, raise awareness, and inspire others facing similar battles. Through therapy and new hobbies like playing the piano, Rayan is finding her way through the condition. Her content aims to feel real, relatable, and inspiring, offering a unique perspective on living with MS.
Rayan’s journey is not unique; others like Deborah Dunne have faced similar life-altering moments. Deborah was diagnosed with MS shortly after graduating and found herself balancing teaching with hospital appointments and redefining her sense of self. After moving to Dubai, she built a strong support network and worked with the National Multiple Sclerosis Society to create awareness and foster a community.
In the UAE, MS affects approximately 19 in every 100,000 people, with women being twice as likely to develop the condition. The National Multiple Sclerosis Society (NMSS) plays a crucial role in improving the lives of those with MS through education, advocacy, and support. Their initiatives include the MS Helpline, which provides confidential support for those living with MS.
Muna Al Harbi, another advocate, faced her diagnosis a decade ago. Initially overwhelmed, she learned to embrace her condition and became a vocal advocate for awareness and support. Through social media and community events, Muna has reached hundreds of people, sharing her story and offering support. Her mantra, “Keep Moving Forward,” emphasizes living fully in the present despite MS.
These stories highlight the resilience and determination of individuals living with MS. By sharing their experiences and advocating for awareness, they aim to normalize discussions about the condition and inspire others to find strength in their struggles.
